Each interview we carry out is designed to explore and better understand what life is like from your perspective; from uncovering symptoms, navigating your way through diagnosis and treatments, to day-to-day life. We want to hear your opinions and discover any unmet needs along the way.

Ultimately, this information is used to help sponsoring companies understand the disease and develop products and associated support services.

Over the last 10 years, we’ve conducted many projects and hundreds of interviews with patients and consistently get positive feedback from those who take part. In sharing their experiences and needs, our community makes a genuine contribution to shaping potential future developments.